Peter Pan, Help!

Peter, please take us to Neverland... I don't want Danica to grow up. At least not too fast. And I don't want to grow old... LOL. Every time I take Danica's photos, she looks a bit older and bigger than the last time. What is going on? My baby is turning into a little girl. Oh no! I love going through her old photos and videos to see how much she has changed in the past year. And let me tell you... she's definitely turning into a little lady.

Just a quick update on my health - My doctor started me on this immunosuppressant called Cellcept and I was on it for about a week. That drug made me very sick! I started getting migraines, mouth sores, eye infection, sore throat... so I asked him if I could stop taking it. And as soon as I did, the migraines went away. I am very sick lately and to be honest, I don't know how I manage to take care of Danica and do all the house chores. I still praise God, because He's always by my side. I pray for strength each day and He gives it to me. My liver enzymes are still elevated and the only drug that helps keep the numbers down is Prednisone. So it looks like I'm going to be on steroids for a while. I pray that I don't have to be on it forever. I know some people are on it for the rest of their lives, as a maintenance drug. Please, please, please... continue to pray for me. I really need to get better so that I can enjoy my life. Not that I'm not, because I love my life but I just want to be normal again. 

And Another One...

My liver enzymes have been fluctuating since September of last year, so my BMT doctors started me on Prednisone. They tried to wean me off the steroid, but my ALT and AST labs went up again. Three weeks ago, one of the doctors decided to put me back on high dosage of Prednisone to control the GVHD in my liver, it worked... for a while... until he tried to wean me off the drug again. So, I've noticed that if I take less than 20mg of Prednisone a day, my labs come back out of whack. The thing is, I can't be on Prednisone for this long. It is killing me... well, not really. I only say that because it makes me super hungry. I'm eating like there's no tomorrow. I've gained 6 lbs in the last couple of weeks. My face looks so swollen. My stomach is distended. Plus, there's a chance I could have diabetes with this drug. So, I'm on this new medication called Mycophenolate. Basically, it's an immunosuppressant used to prevent rejection following a transplant. One of the side effects is it may lower my blood count (but not to the point where I will need transfusion again, at least I hope not... well, my doctor will keep an eye on me). I get my blood drawn every week, just to make sure I'm okay. Also, to determine whether there will be changes with my medications. I pray that this drug will work for me. Please, Lord, continue to heal me. I just want to be normal again.

I'm a Mess

My husband always catch me eating...and I'm quite embarrassed about it. Last night, he caught me taking food out of the refrigerator just before bedtime. As if I didn't have enough for dinner. I even had a Belgian waffle with banana for dessert. Anyway, I can't control my eating habits lately and it is driving me nuts!!! I feel so bad for eating so much, but I really can't control it. Being on high dosage of steroid makes me super hungry. I bought a lot of vegetables and fruits so at least I'm munching on healthy food. I just want to be back to normal again. I've developed that "moon face" look due to Prednisone. I hate it! I look so fat, even though I only weigh 105 lbs. It's so funny how people tell me that I've "gained so much weight." Hello??? Seriously, I weigh 105!!! Steroids cause fluid accumulation, which makes me look fat. Don't ever tell a girl that she's fat. Even if it is true, do not ever tell a girl that she is fat! Just trust me on this... Lol.

That's all for now.