Last night, I barely got some rest. The nurse was in and out of my room, checking my vitals, pushing meds, assessing my mouth and skin. I had so much pain, especially in my legs. Due to lack of exercise, perhaps. First I asked the nurse for Tylenol, didn't work. Then she offered Morphine, no effect. Finally I tried Dilaudid and that's what did it for me. I was pain-free for 3 hours.
Before I got diagnosed, I never really took anything for pain. Just topical analgesics, such as Vicks, Bengay, Salonpas and/or Katinko. It makes my room smell like an old woman's perfume, but it really is the only answer to my muscle aches. So tonight, my sister, Ate Ex, visited me and gave me Katinko. I was like a little girl in a carnival, eating cotton candy. Yes, my friends... It's the little things in life that makes me happy. That's how simple I am.
Well, it's now Day 2 post BMT. I had my hair cut today and boy oh boy do I look like a boy. Hahaha!!! I don't really care how I look, as long as I get cured. And as long as I can be here for my family and friends. On a sad note, the Bulls lost tonight. That probably hurt the most, forget the Chemo! Bwahaha! Good night, sleepyheads.
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Thursday, May 26, 2011
Wednesday, May 25, 2011
Today is Day One Post BMT
I haven't eaten since Saturday morning. I have 6 different lines hooked up to my PICC line. One of them is TPN (total parenteral nutrition). This is how they will feed me because I can't hold anything down. My stomach feels queasy. I'm gagging all over this room. To top things off, I have diarrhea. Sorry TMI.
Luckily, Raul is here to see me everyday. Just where and how would I be without him? He is my advocate. He takes care of all the paperworks, calls the doctor, he's very proactive when it comes to my health. I love the fact that he's involved with everything, almost as if he is the doctor himself. The nurses are scared of him. Haha! Raul is the kind of person who doesn't take "no" for an answer. I love my husband!
So it's Day 1! I'm super excited to be 100% again. Good night for now. XOXO
Luckily, Raul is here to see me everyday. Just where and how would I be without him? He is my advocate. He takes care of all the paperworks, calls the doctor, he's very proactive when it comes to my health. I love the fact that he's involved with everything, almost as if he is the doctor himself. The nurses are scared of him. Haha! Raul is the kind of person who doesn't take "no" for an answer. I love my husband!
So it's Day 1! I'm super excited to be 100% again. Good night for now. XOXO
Tuesday, May 24, 2011
Done
I did it. At 11:00 in the morning, the nurse infused the donor's stem cells into my bloodstream. No adverse reactions noted. Praise God!
I was told by one of the nurses that she had a lady down the hallway, who is very depressed because she has a 3-month old baby boy at home. I had her call my room number and she did. We were both in for bone marrow transplant. Although we had two different diagnoses. I assure her that she will be fine. We talked for while, because my nurses were working on me. But before I let her go, I asked if I could say a short prayer for her and I did. Amen. Ever since I got sick, it has been easier for me to talk about God with others. This is truly God's plan. Praise be to God.
I was told by one of the nurses that she had a lady down the hallway, who is very depressed because she has a 3-month old baby boy at home. I had her call my room number and she did. We were both in for bone marrow transplant. Although we had two different diagnoses. I assure her that she will be fine. We talked for while, because my nurses were working on me. But before I let her go, I asked if I could say a short prayer for her and I did. Amen. Ever since I got sick, it has been easier for me to talk about God with others. This is truly God's plan. Praise be to God.
Monday, May 23, 2011
Update
I didn't blog yesterday because I was very exhausted. My WBC is going lower and lower. I had nausea and vomiting. I haven't eaten in 3 days. I can't sleep, the nurse and her assistsnt kept coming in to check my vitals. Gosh, it has been only 2 nights and I'm already sick of this place. I want to see my baby love already..
Friday, May 20, 2011
I'm All In
This is it, I've checked in at City of Hope. I'm in Room 6103. Here's where I'll be for the next 4-6 weeks. Oh I miss Danica already. I can't wait to see her and hold her again. That little girl just melts my heart. Every time I look at her and she smiles at me, she makes the pain in my heart go away. She brightens my day, she's my sunshine... My only sunshine (just like the song).
My white blood cell is down to 0.6. The doctor said it will go even lower. I'm not looking forward to it, but this is something I have to do to get better. I will receive Melphalan at 11 pm tonight. This is the drug that will make me feel really bad, I heard. Blah!!!
My white blood cell is down to 0.6. The doctor said it will go even lower. I'm not looking forward to it, but this is something I have to do to get better. I will receive Melphalan at 11 pm tonight. This is the drug that will make me feel really bad, I heard. Blah!!!
Thursday, May 19, 2011
Good Evening! It's Day 5
I was asleep most of the day, so I'm checking in late tonight. My platelet count was low; 37,000 yesterday and my guess is it was most likely around 25,000 this morning. The nurse didn't bother checking my blood count because my doctor has standing orders to transfuse below 40,000. Really, I should have gotten it yesterday but I refused to. I hate getting platelet because I have to be premedicated with 25 mg Benadryl IV. It makes me groggy, sleepy, dries my throat... but it's something I need to prevent any adverse reactions from receiving platelet transfusions.
My older sister noticed my weight gain. I thought I was the only one. I'm eating the same amount of food. If anything, I'm eating less because I don't have an appetite lately. Must be the Chemo. Blame it on the C-H-E-M-O! Haha :D
Before I sign out, I also wanted to share that my Grandma Net went to the ED today. Praise God! My Lola is doing well. She had a CT scan done, the doctors didn't find anything wrong except that her BP was elevated. She just needs some R&R, that's all. Please include her in your prayers. I don't want anything bad to happen to her. Having her here reminds me of my childhood with Lolo Pering and Lola Medy. They all have the same positive attitude and very outgoing. If you ask me to describe Lola Net in one word, I would say she's "cute." Why I think she's cute? Let's save that story for another day.
Sweet dreams.
My older sister noticed my weight gain. I thought I was the only one. I'm eating the same amount of food. If anything, I'm eating less because I don't have an appetite lately. Must be the Chemo. Blame it on the C-H-E-M-O! Haha :D
Before I sign out, I also wanted to share that my Grandma Net went to the ED today. Praise God! My Lola is doing well. She had a CT scan done, the doctors didn't find anything wrong except that her BP was elevated. She just needs some R&R, that's all. Please include her in your prayers. I don't want anything bad to happen to her. Having her here reminds me of my childhood with Lolo Pering and Lola Medy. They all have the same positive attitude and very outgoing. If you ask me to describe Lola Net in one word, I would say she's "cute." Why I think she's cute? Let's save that story for another day.
Sweet dreams.
Wednesday, May 18, 2011
Day 4
I wish it was already Friday. On Friday, I will be admitted at 2 pm in the main hospital. I feel like crap, this Chemo is kicking my butt. I want to check in and get admitted already because I don't feel well. My White blood cell is down to 0.9 - I have to avoid being out, especially in a big crowd. I'm now sporting a yellow mask that covers my nose and mouth. I'm also starting to look very sick, and I don't like it. People in the hallway stare at me as Raul pushes my wheelchair. This place is making me sick, or maybe it's the Chemo. I can't wait to get better....
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